Breathtaking Fundraising NPC, a non-profit company dedicated to raising awareness for Cystic Fibrosis, hosted a spectacular gala event at Johannesdal 1207 in Helshoogte recently.
The organisation’s mission is to provide training at State clinics on the early signs and symptoms of Cystic Fibrosis as well as raise funds for life-saving medication that can prevent premature death and the need for double lung transplants in patients living with the disease.
With a vision to ensure all individuals living with Cystic Fibrosis in South Africa have access to the most effective treatment, Breathtaking Fundraising NPC highlighted the urgent need for medication such as Trikafta, which is currently inaccessible to an estimated 400 patients.
The gala event served as a platform to honour and thank volunteers, corporate partners, and members of the CF community for their unwavering support.
The evening was a celebration of life in all its beauty and challenges, mirroring the essence of Cystic Fibrosis itself – a breath-taking disease.
Richard Burger, a person living with Cystic Fibrosis, delivered an inspiring speech, reminding those present that challenges are an integral part of life’s journey.
“Just breathe and be lekker,” he urged, emphasising the importance of resilience and positivity in the face of adversity.
The gala event was not only a night of celebration but also a significant fundraising effort.
More than R100 000 was raised to support patients in need of life-saving medication, with an additional R30 000 sponsored by the Harcourts Foundation to provide hospital Goodie Bags for newly diagnosed patients.
Breathtaking Fundraising NPC continues to make strides towards their goal of ensuring access to vital treatment for all individuals living with the disease, embodying the spirit of resilience and hope in the face of adversity.
Cystic Fibrosis is a rare disease and patients inherit the recessive gene from both parents. There are currently an estimated 625 people living with Cystic Fibrosis in South Africa.
To find out more about Breathtaking Fundraising NPC and what they do please visit their website: www.breathtakingfundraising.co.za or E-mail Maré at: mare@breathtakingfundraising.co.za
